Mirena is EVIL!

19 May

Mirena is an IUD/IUC that is being marketed heavily by most OB/GYNs and women are not being informed of all of the horrendous side effects that many have experienced following its insertion.  This is my experience with the Mirena IUD…

Three months after giving birth I got the Mirena IUD inserted at my OB/GYN’s office.  This was not cheap, not at all, even with insurance… but since it was so highly recommended by my doctor and I have a friend who has it and has had no problems it sounded like it would be ideal and I was excited to get it in.  I mean, all I have to do is have this one appointment and get this little thing inserted into me and then I don’t have to worry about getting pregnant for FIVE years!  They said there aren’t really any side effects except for spotting awhile and after that I wouldn’t have to even worry about having a period at all!  I forgot the old cliché, “if it sounds too good to be true it probably is”!

After having the Mirena IUD inserted my pain from my fibromyalgia and Lupus became noticeably worse almost immediately, and that was only the beginning of the side effects for me.  I had extreme fatigue, depression, mood swings, insomnia, anxiety, weight gain, joint pain, hair loss, abnormal hair growth in male pattern areas, appetite changes, spotting, pelvic pain and odor, loss of sex drive, headaches and dizziness just to name a few.

The weight gain, swelling and bloating, especially in my stomach, was crazy.  I had started to see my stomach shrink back to the pre-pregnancy size and had already lost 30 lbs before I got the Mirena.  After it was inserted only four months later I had gained over 20 lbs and my stomach looked like I was about four or five months pregnant again.  My ankles and wrists, even my fingers were so swollen I looked like a balloon that was about to burst. 

I went from wanting sex so much that I jokingly called myself a nymphomaniac to feeling repulsed by the thought of sex and avoiding it at all costs.  It was not only my sexual appetite that changed but my eating habits and appetite changed as well.   I used to be able to fast and feel good about it for a while, and suddenly I was going through stages where I was eating like a horse and could not stop eating.  No matter what I would be hungry, and I could never quench that craving for the next item of food.  When I would force myself to diet and eat properly and exercise I would still keep gaining weight so it seemed hopeless and I had no idea what was wrong with me. 

My joint pain from Lupus and Fibromyalgia got so much worse that at times I could not even pick up my new baby, who was premature and tiny anyways.  I got so bad that I could hardly get out of bed, and there was no way I could leave the house.  I could barely drive and I could not carry the baby carrier into the store to shop or anything.  I ended up totally stuck at home, hurting too bad to even hold my spoon and eat at times.  Yes, it was that bad and I am not exaggerating at all.  Plus, I have a very high pain tolerance and for anything to hurt me it has to be extremely painful!

My hair was falling out in huge wads and it was not stopping!  I could not sleep, no matter how exhausted I was.  I was having terrible headaches, even worse than the normal migraines that I have grown used to over the years.  I started to have strange hair growth that I never had before, little hairs trailing up my belly and little hairs on my face and even occasionally around my nipples, and thickening hair on my face!  That hair growth just kept getting worse and worse until I was plucking the areas at least once a day! 

As if all of this was not enough I started having terrible pains in my pelvic area.  I was not only having pain there, but constantly noticed a discharge and odor that no matter what I did would not go away.  I would have sharp pains feeling like they were in the area of the ovaries and then pains that would just double me over in the cervix and uterus area.  It was all of this pain and trouble in the pelvic area that made me start to put things together, and when I checked for my strings on the fourth month I could not feel them. 

I looked online and realized that other people were having these same problems and called my OB/GYN and told her office I could not find the strings and was having terrible pain.  When they finally got me in over a week later they were cold to say the least and also tried to talk me out of having the Mirena removed.  They didn’t act like they believed me about all of the side effects I was having and did not warn me of any I might have post-removal.  I said I still wanted it out if they could find it and so they went in to look.  Finally they found it and it was growing into my uterine wall and they had to snip it out.  Then I asked for a different method of birth control and they prescribed me orthocycline and left me to get dressed.  When I asked if we could look into my terrible pain in the pelvic area I was told to give it a few months, if I am still hurting they will look into it.   I saw they just threw the Mirena IUD in the trash and snapped a picture of it before I left, I couldnt believe that they just tossed it in there like that.  So, I paid for another expensive doctor visit and this is just one more problem I have had from the Mirena.

After having the Mirena IUD removed within 12 hours I could see that I have ankles again!  I am still having most of the other side effects, but the appetite seems to be settling down.  I am having terrible bleeding and expreiencing what they call the “Mirena Crash” which is terrible mood swings, depression, headaches, and insomnia that are maybe even worse than when I had it in.  But I have noticed that the hair loss is slowing down and I really feel hopeful that getting this thing out is going to help things get back to normal.  I know it will take some time, but I am excited about the possibility of being myself again someday. 

Please research the Mirena IUD very carefully before you get one.  I know they are apparently working fine for some people, but I suspect they may be having side effects and problems that they don’t even know are being caused by the Mirena.  I am now doing research into silicone poisoning due to the Mirena because I have found it is something that alot of people are experiencing and I have symptoms. It is very upsetting how I was not told of the possible side effects of having the Mirena in or  of the “Mirena Crash” after having it out. I will keep updating this site with how my post-Miren a experience plays out!  It has been a little over a week since I had it removed as of today.

18 Responses to “Mirena is EVIL!”

  1. lizabit 05/25/2010 at 12:45 pm #

    wow! so glad you posted that! i was thinking about getting an iud … my doc recommended it too. i will definitely NOT do that now! thanks for sharing your experience.

  2. mrsslimambition 05/25/2010 at 1:23 pm #

    i am so glad that it helped! that is the whole reason i wanted to write about it, to hopefully help other people not go through what i have!

  3. Diana 10/22/2010 at 8:29 pm #

    Wow, I a, having the same symptoms. I just keep thinking its related to something else. I am going to get it removed.Thanks for writing this I thought I was going crazy, but I am not its really true. Thanks.

  4. Stephanie 11/27/2010 at 4:28 pm #

    Thank you so much for this post. I have been incredibly sick for the last 4 years, since I had the Mirena. I have had horrible mood swings, anger, sweating, fatigue, dizziness, diarrhea, gallbladder removal, cardiologist visits, limb numbness etc. I never thought about the Mirena being the culprit, now I want it out! I am calling on Monday to get it removed. How long did the bleeding last after you had it removed? How should I expect to feel after having it removed? I know I need to have it removed but I am scared of the side effects of that too. Thank you for your post, and your help!

  5. Brittni 01/08/2011 at 1:41 pm #

    I know I am a few months late on this post, but THANK you for writing it! I had Mirena in until yesterday, when it decided to start falling out on its own as I was checking my strings, so I pulled it out the rest of the way. Mine has a big glob of goopyness just like your picture, except mine was on the middle of the “T” cross. It’s soooooo gross and not even 24 hrs later I am feeling much much different!

  6. Gillian Stephens 01/27/2011 at 8:09 am #

    This is just what I’m looking for. Especially interested in reading that others have had this problem like me. I notice from the comments I’m not on my own. Thanks for the article.

  7. Nikki 02/18/2011 at 1:26 pm #

    Has the fibromyalgia pain gotten better since you have had the mirena removed? I had some back problems pre-mirena but they were never chronic. Since I got the mirena, it has gotten so bad that I can barely tolerate it and I have been told symptoms might suggest fibromyalgia. I have also experienced the exhaustion, mood swings, insomnia, hair loss/growth and have pretty much watched my health go down the drain.

    I’m considering having mine removed but husband doesn’t think it is mirena and I’m scared to have it out if the symptoms don’t go away. All of the other birth control methods make me feel sick and mirena was the most low maintenance, low hormone method I found. It’s just hard to know if they are indeed mirena caused or just problems that happened to start at the same time…

    So, are your symptoms all better now that it is out?

  8. mandy 05/12/2011 at 11:02 pm #

    I am so happy to hear your doing better and please keep in touch with me!

  9. Dora 07/07/2011 at 2:37 pm #

    I had alot of your symptoms but when i went to doctor not gyn about not feeling well and the doctor told me i suffer from parathyroid and these are supposedly some of the symptoms and i should operate on it. was anybody her nausches. for the past few days i am nausches and have spotting or bleeding maybe period, and alot of itching in vagine or around

    • mrs. s 07/07/2011 at 3:12 pm #

      you may be suffering from that as well, but vaginal symptoms would not be related to your thyroid. also the mirena may make your symptoms and thyroid problems worse.

  10. carol 07/25/2011 at 4:11 pm #

    Never even entered my head this could be caused by silicone my life has been a living hell for 6 months and my family i am shocked that this is allowed on the market cant wait to have the thing ripped out, MIRENA is pure HELL

  11. haartransplantation24 07/30/2011 at 11:06 am #

    Im very glad that it helped. Additional thank you for this blog. I will visit it more often in future…..

  12. Carol 08/02/2011 at 10:39 am #

    thank you for this post. My doctor wants me to use mirena to stop my constant bleeding (fibroids, perimenopause). I too have lupus and fibro and am leery of adding this device to my problems.
    You just gave me the answer I needed. I am definitely not going to use mirena and I am going to show my doctor what you have written.

  13. Beth Templeton 09/23/2011 at 4:20 am #

    I just took mine out. Its not like im even having sex with anyone, dont need the added hormones, god knows what they are doing, trying to lose weight too so lets see what happens !

  14. Christina 12/19/2011 at 10:31 pm #

    Are you still able to have kids because I have the mirena and I have really bad pains down there and my stomach is killing me and sometimes I think if I could get pregnant I don’t know but I feel like somethings wrong.

  15. Lachic Buchanan 01/26/2012 at 7:26 pm #

    Hello gang, Im a 31 yr old chick, I have a 5 yr old mini me. I got the Mirena on Dec.20 2007, I thought it was gonna be great, not gonna have to take a pill everyday…whoohoo!!! everything was working out fine them BAM!!! im on the bathroom floor with paramedics around me, Im “coming to” speaking to everyone, saying hello, hi. IM totally confused as to what the hell happened. The doctors are describing to me that I just had a seizure. Im thinking to myself “where the hell that come from”…I’ve never had one in my 31 years of living. The docs wanted to medicate me and send me home.(i didnt want it). A couple more months go by…and here goes another one(daydreaming out the window)back to the hospital we go again. they hook me up to the machines to try and cause a seizure with all the flashing lights…NOTHING!!!….WHY because im not epeliptic…hhhmmmm. this time I take the med’s. Now im feeling tingling in my fingers, im feeling slow..a little stupid and cant concentrate at times, and forget words that Im liiking for while talking…very frustratng!!!!. Now a year later everything is cool then BAM!!! POW POW…I hit a car and a light pole due to having a seizure while driving(tear)!!! Then it hits me…all this CRAP starting after I got this DAMN IUD!!!! but these damn shitty ass doc’s wanna say its irrelivant??? really??? oh im crazy huh??? this thing is cummin out!!!! bet that!!!

    • Heather 02/26/2012 at 12:16 pm #

      I had Mirena put in back in July. Been getting worse ever since. Put 2 and 2 together and went looking online to research and find all this. Now, I’m mad as… looking for answers.

      Is there a class-action??

  16. Tricia 05/31/2012 at 12:37 pm #

    So does the exceesive hair growth and acne go away after removed? I have to wax my cheeks, and lip now. I’m 30 years old and NEVER had a facial hair issue. Plus the acne hasnt stopped since I have had my Iud. I want to get it out, but not if nothing will change

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